Larry Kaplan is dropping everything for 30 days, to raise research dollars for a disease that doesn’t have a cure, and provides a grim future for those diagnosed with it.
Kaplan says he’s happy to give up thirty days before returning to normal life in Philadelphia because people diagnosed with ALS aren’t so fortunate.
"I get to go back to my normal life after this month,” said Kaplan. “You don't get to go back to your normal life when you're diagnosed with ALS. Your life and your family's life changes forever."
Amyotrophic Lateral Sclerosis is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.
As of now, ALS is always fatal, and Kaplan says most people have a lifespan outlook of two to five years once diagnosed.
In part because of the ice bucket challenge, and former NFL player Steve Gleason’s public struggles with the disease bringing ALS to the forefront, Kaplan says now is the time to finally find a cure.
"This is all about a crazy kind of stunt, but that craziness has a serious issue,” said Kaplan. “It's for a serious reason, and it's to raise awareness, to raise funding, and to find a cure for ALS."
Kaplan is confident that between the stops he’s making in various cities and the videos he’s posting to the website he created, awareness will keep increasing and donations will keep pouring in to the ALS Association.